Posts tagged ‘Remembering’

Today is the official LAUNCH date of Hailey’s Hope!

Finally I can fully reveal what I have been hinting at over the past week or so on my blog and my facebook… Are you ready for my breaking news?!

We’re starting a project called Hailey’s Hope, and we’re soooo excited!!!!!

Simply speaking, Hailey’s Hope will donate gift bags to families who have babies in the NICUs at The Children’s Hospital of Alabama. I am the project leader so I am responsible for gathering donations, creating the bags, and delivering them. My project is possible thanks to the support of a larger organization of parents just like me, who have had the experience of having a child in a NICU and are looking to give back and help provide items that will support and comfort the babies and families; this organization is called Project Sweet Pea.

For more information, I have created a separate page in my blog dedicated to all things Hailey’s Hope – please visit this page today! There you will find more information about Hailey’s Hope, Project Sweet Pea, what these gift bags include, and how you can help!

I have also created a Facebook page for Hailey’s Hope (I hope that link will work!)- you can become a fan and keep updated with what’s going on with our project there. I want to spread the word as much as possible and get as many people involved as I can! This project will not be possible without donations from people like YOU!

Let’s remember Hailey and bless other families!


April 12, 2010 at 10:06 AM 2 comments

Pink Azaleas for Hailey

Yesterday we planted our flowers, and we bought a special one for Hailey. (more…)

April 10, 2010 at 4:29 PM 2 comments

A quick happy to share

My friend and I used to call anything that happened to us that made us happy a happy or happies – we changed the adjective into a noun.

So today, just a quick happy to share…

On Hailey’s 4 month birthday, I received the best, unexpected present in the mail.

New pictures of Hailey that I had never seen before! I don’t think there is anything better. When you lose a child, the pictures you have are the pictures you have. There will never be anymore. I remember feeling sad the day I uploaded the last images I had of Hailey to my 3rd facebook album containing her pictures.

But then, when we came back from her memorial service and our stay back home, I had our pictures from Now I Lay Me Down to sleep. New pictures when I thought there would be no more. Another gift with perfect timing.

And then almost 3 months since Hailey passed, I really thought I would never see or have any new pictures of her.

But I was wrong! My mom had taken pictures (on her ancient 35mm camera) of Hailey and us during her stay here right before Hailey passed away, and she just managed to send them to me now. I thought perhaps it would have been late timing, but God made it just right.

What a perfect present for me on Hailey’s birthday. Again, new pictures when I thought there would be no more.

It’s like seeing her again for the first time. Remembering more memories of her. They bring me back to her again. Seeing those new photos bring a new excitement and a new joy.

Definitely a happy. 🙂

April 3, 2010 at 8:53 AM 2 comments

Scrapbooking Chaos

Scrapbooking is one of those hobbies that I felt was perfect for me. I love taking pictures, looking at pictures, collecting mementos, capturing memories, showing them off, and I enjoy all things arts and crafts. However, I really have only created 2 scrapbooks in my life.

The first one was a scrapbook I made of mine and Josh’s dating life way back when we were dating. It was a good attempt, but I think it taught me I was not the natural scrapbooker I wanted to be. It wasn’t a failed attempt, but it sure wasn’t a great example of scrapbooking.

My second attempt at scrapbooking was better than the first. I made a scrapbook of mine and Josh’s vacation to Walt Disney World. I am quite proud of the pages I completed. However, there are still 2 empty pages with photos stuck inside and some sticky notes of what I ‘meant’ to do … still there 5 years later. 🙂

So as I mentioned some posts back, I am making a scrapbook of Hailey’s life; therefore, this is my 3rd attempt at scrapbooking. Despite my past, somewhat lackluster, unsatisfying attempts at scrapbooking, I have to say that I am truly enjoying making this scrapbook. And I love remembering Hailey as I make it, even though some of the memories are difficult ones. The good, the bad, it’s all my Hailey and I love it all because of that.


March 21, 2010 at 5:33 PM Leave a comment

Happy Friday – Keeping it short but sweet today

This is a week delayed, but…

Be Not Afraid (the organization that allowed us to publish Hailey’s story on their website) has a blog (I’ve added the link to my blogroll). The exciting news I want to share is that the blog post from March 10, 2010 is about Hailey and my blog! 🙂

Love it!

To read the short but sweet blog post, click here.

I’m off to enjoy this gorgeous warm AL weather and ready to start my weekend! Have a great weekend readers!

March 19, 2010 at 11:35 AM Leave a comment

Today is National Trisomy 18 Awareness Day!

Today, March 18, 2010, is National Trisomy 18 Awareness Day!

National Trisomy 18 Awareness Day occurs on the 18th day (to represent the chromosome affected – the 18th chromosome) of the 3rd month (to represent the trisomy – the 3 copies of the chromosome) of the year.

What can you do?

  • All of you on Facebook, to raise awareness consider posting this as your status for today:

Today is National Trisomy 18 Awareness Day, the 18th day of the 3rd month, 3/18. Please consider reposting this as your status if you know someone who has been diagnosed with Trisomy 18 along with that child’s name to help raise awareness and honor that child’s life. If appropriate, consider using an image of the child as your profile picture for today. ~In loving memory of my daughter, Hailey Marie Vanderlip~

  • You can share links to my blog or to my posts about Trisomy 18 via facebook, twitter, email, etc.
  • You can share the YouTube video ’99 Balloons’ about Eliot, probably the most famous baby diagnosed with Trisomy 18, via facebook, twitter, email, etc
  • You can spread the word about Trisomy 18 with others in your conversations today and help educate others.
  • You can educate yourself if you still don’t know much about Trisomy 18.

Here are some links you might consider sharing:

March: Trisomy Awareness Month Blog Post

Hailey’s Story on Be Not Afraid

99 Balloons

Trisomy 18 Foundation

Trisomy 18 Hope

Do you know someone besides Hailey who was diagnosed with Trisomy 18? Leave a comment for me, I’d love to hear about it!

March 18, 2010 at 3:53 AM 2 comments

Now I Lay Me Down to Sleep

On December 4, 2009 we learned of Hailey’s fatal diagnosis, and we were moved to a private room where we were able to spend every minute with Hailey and truly enjoy her. We received a lot of information that day and had a lot of support services offered to us. (Talk about information overload and feeling overwhelmed!)  The palliative care nurse assigned to us told us that she could pretty much make anything happen for Hailey that we wanted – and yes, the idea of sneaking Opie into the hospital was discussed as a very realistic possibility. 🙂 But thankfully we didn’t have to do that…but they did order a birthday cake for us on her 1 week birthday 🙂

One of the pamphlets and services that was offered to us was something called “Now I Lay Me Down to Sleep.” Now let me tell you, as a new mother who just learned that her baby had a fatal disorder, I was only able to read the title of organization before bursting into tears. The name was the saddest thing I ever I thought to myself… Thankfully the palliative care nurse explained the mission statement of the organization since I couldn’t read it on my own: Click here to keep reading!

March 14, 2010 at 3:07 PM 1 comment

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