Hailey’s diagnosis Friday, December 4, 2009 at 5:22pm

January 11, 2010 at 7:39 PM Leave a comment

Before surgery this morning we received some important test results back. I’m not going to go into details, but the tests show that Hailey has an incurable, untreatable genetic disorder that is lethal. This means that we have no idea how much time she has here with us – could be hours, days, weeks, maybe months. Therefore we canceled her surgery and are doing whatever we can to keep her comfortable and limit any pain to her as much as possible. She’s in a private room with us now and we have family visiting. We’re able to hold her now, give her kisses, she’s dressed in her clothes, and I can try to feed her at some point – so we’re trying to do what we can to make the most of our time with her.

I won’t go into much detail but we are obviously heart broken, but we have a strong faith in God that this is all His plan… It brings so much comfort to know how much God loves her and us and He’ll lead us through this difficult time.

Please pray for Hailey to not be in any pain and have the best time here that she can.


Entry filed under: Hailey, Trisomy 18. Tags: , .

Hailey Marie Vanderlip Friday, December 4, 2009 at 8:19am About Hailey Monday, December 7, 2009 at 11:54am

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"God gives, God takes. God's name be ever blessed." ~Job 1:21

In Loving Memory of Hailey Marie

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