Hailey’s diagnosis Friday, December 4, 2009 at 5:22pm

January 11, 2010 at 7:39 PM Leave a comment

Before surgery this morning we received some important test results back. I’m not going to go into details, but the tests show that Hailey has an incurable, untreatable genetic disorder that is lethal. This means that we have no idea how much time she has here with us – could be hours, days, weeks, maybe months. Therefore we canceled her surgery and are doing whatever we can to keep her comfortable and limit any pain to her as much as possible. She’s in a private room with us now and we have family visiting. We’re able to hold her now, give her kisses, she’s dressed in her clothes, and I can try to feed her at some point – so we’re trying to do what we can to make the most of our time with her.

I won’t go into much detail but we are obviously heart broken, but we have a strong faith in God that this is all His plan… It brings so much comfort to know how much God loves her and us and He’ll lead us through this difficult time.

Please pray for Hailey to not be in any pain and have the best time here that she can.

Advertisements

Entry filed under: Hailey, Trisomy 18. Tags: , .

Hailey Marie Vanderlip Friday, December 4, 2009 at 8:19am About Hailey Monday, December 7, 2009 at 11:54am

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Trackback this post  |  Subscribe to the comments via RSS Feed


Dedication

"God gives, God takes. God's name be ever blessed." ~Job 1:21

In Loving Memory of Hailey Marie

Pick a day, read a post!

January 2010
M T W T F S S
    Feb »
 123
45678910
11121314151617
18192021222324
25262728293031

Your love O Lord Reaches To The Heavens Pslam 36:5

Archives

Photo Sharing and Video Hosting at Photobucket

Email me

If you have a private comment, a story, or a question, I'd love to hear from you! Please feel free to email me at k.vanderlip@gmail.com. I will do my best to reply in a timely manner.

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 13 other followers

Blog Stats

  • 29,816 hits

%d bloggers like this: