About Hailey Monday, December 7, 2009 at 11:54am

January 11, 2010 at 7:40 PM Leave a comment

Today Hailey is 6 days old. She will have her 1 week birthday tomorrow – we’re working on planning a little party for her.

Here’s a little description of our Hailey. She has:
-a fine head of dark hair
-light blonde fine eye lashes and eyebrows
-big baby blue eyes
-a cute little round nose
-small pursed lips
-tiny little elf ears
-i tihnk she has big feet but no one else does 🙂
-most ppl say she looks like me with the small features (besides my nose :P) and elf ears

Here are some of her likes and accomplishments:
-She likes to hold your finger in her right hand
-She loves sucking on fingers
-Her favorite thing is one finger in her mouth and one in her hand
-She likes her purple paci
-She likes looking at you when you talk
-She tends to sleep with her eyes open
-When you hold her and she’s sleeping she’ll peek at you with one eye every now and then – it’s like she doesn’t want to miss anything
-Recently she started reaching her right hand up toward you – she ‘punched’ me in the nose yesterday and ‘punched’ her stuffed giraffe in her nose
-I think she likes feeling her soft giraffe when we run her hand over it
-She watched Favre play for the first time last night – bad first game to see
-I read her her first bedtime story last night – i think she liked it
-Her daddy bought her her first bouquet of flowers a couple of days ago that she got to see and smell
-She took her first bottle of breast milk a few days ago also – we’re still working on feeding her
-She hasn’t had any breathing attacks /apnea in several days
-When she’s fussy she likes being held and rocked or walked around and rocked, being swaddled tightly, and sucking on a finger or paci
-She has a great flowery baby smell to her that I could just breathe in all day long – love it!
-She had her first professional photos taken of her Saturday night

More info about her condition…
-She is only on an IV and oxygen (just in case)
-Her stomach bandage was changed today and it looks pretty good – we’re working today trying to figure out a long term solution for it so that she’s comfortable and we can take her home
-She’s only on morphine when we feel like she’s in a lot of pain – she wasn’t on any for a couple of days but starting last night she had some more
-So at this point she’s doing good – we’re trying to figure out her stomach situation, see if we can take her off her IV and work on bottle feeding her if we can otherwise we may have to use a feeding tube when we go home, if we get to take her home, the hospital will arrange for hospice to come and work with us at our house to take care of her… so we’ll have big decisions to make later today and see what happens next…

We’re thankful for everyone’s thoughts and prayers. I’m especially glad that we can keep everyone up to date with the Internet and Facebook since we live to so far away from family and friends. Even if Hailey can’t meet our friends and family we at least want to share her with you all so you can get to know her a little bit from these updates and photos.


Entry filed under: Hailey. Tags: , , , , , .

Hailey’s diagnosis Friday, December 4, 2009 at 5:22pm Hailey’s first night home… Thursday, December 10, 2009 at 9:01am

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"God gives, God takes. God's name be ever blessed." ~Job 1:21

In Loving Memory of Hailey Marie

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